And Lucy.
Monday, April 17, 2017
I hope our other children never find out about this blog.
And Lucy.
Thursday, November 14, 2013
Take Action Now!
| In Memory of Penny Sipes July 24, 2011 - February 13, 2013 |
On October 8th 2013 Rachael, Lucy and I traveled to Washington DC to lobby the Congress and Senate about the Sudden Unexpected Death Data Enhancement and Awareness Act (S.314/H.R.669) which was introduced with bipartisan support. This Act would fund research and standardize autopsies for for stillbirths, SIDS and SUDC. Right now the way autopsies are performed and data from autopsies are collected in these types of deaths vary from county to county. (Except in the case of SIDS, which is defined as a child 0-12 months.) This would extend the age range of the standardized autopsies and data collection to include stillbirths up to 4 years-old. Penny was 18 months-old and considered SUDC. "Sudden Unexplained Death in Childhood".
Well, we have some great news! I have been informed that HR669 will be included in a hearing next week of the House Subcommittee on Health!
Details: November 13, 2013
Committee on Energy and Commerce Subcommittee on Health
HEARING NOTICE
The Subcommittee on Health will hold a hearing on Wednesday, November 20, 2013, at 2:00 p.m. in 2123 Rayburn House Office Building. The hearing is entitled “Examining Public Health Legislation to Help Local Communities.” Witnesses will be announced and are by invitation only. The hearing webcast will be available at http://energycommerce.house.gov/.
To boil it down, this hearing will decide if The Congressional Subcommittee on Health think it's worthwhile to fund research that will help find the cause for Stillbirths, SIDS and SUDC. And once we find the cause we can find a way to prevent it form happening to any more babies.
It has taken more than 4 years for this Act to get to this point, so it is reason to celebrate!!!!! But it's also a reason to quickly move into action!
HERE 3 WAYS YOU CAN HELP:
#1- If you live or work in any of the states that the following Congressional members represent (listed on bottom of this email)- PLEASE- call their DC office before Nov 20 and ask for their support of HR669 at the hearing on November 20th and in any negotiations that follow. If you have family/friends in their district- please ask them to call. I've added links to all the Congressmen's websites and phone numbers to their Washington DC office. So check their website to see if you live in their district then give them a call and say "As a constituent I would like to ask that the Congressman please support HR669 The Sudden Unexpected Death Data Enhancement and Awareness Act."
#2 - Follow this link and send a letter to your Congressman and Senators in support of this act. It's easy and it literally takes 1 minute. Please, at the very least, do this right now.
https://www.votervoice.net/SIDS/Campaigns/26685/Respond
#3 - Please spread the word! Send the link to this blog post to everyone you know. Email, Facebook, Twitter, anything and everything you can do to spread the word will help.
Thanks so much!
Andy Sipes (Penny's Dad)
Vice Chairman: Michael C. Burgess, M.D. (TX)(202) 225-2919
Ed Whitfield (KY) (202) 225-3115
John Shimkus (IL) (202) 225-5271
Mike Rogers (MI) (202) 225-4872
Tim Murphy (PA) (202) 225-2301
Marsha Blackburn (TN) (202) 225-2811
Phil Gingrey (GA) (202) 225-2931
Cathy McMorris Rodgers (WA)(202) 225-2006
Leonard Lance (NJ) (202) 225-5361
Bill Cassidy (LA) (202) 225-3901
Brett Guthrie (KY) (202) 225-3501
Morgan Griffith (VA) (202) 225-3861
Gus Bilirakis (FL) (202) 225-5755
Renee Ellmers (NC) (202) 225-4531
Joe Barton (TX) (202) 225-2002
Fred Upton (MI) (202) 225-3761
John D. Dingell (MI) (202) 225-4071
Eliot L. Engel (NY) (202) 225-2464
Lois Capps (CA) (202) 225-3601
Jan Schakowsky (IL) (202) 225-2111
Jim Matheson (UT) (202) 225-3011
Gene Green (TX) (202) 225-1688
G.K. Butterfield (NC) (202) 225-3101
John Barrow (GA) (202) 225-2823
Donna M. Christensen (VI) (202) 225-1790
Kathy Castor (FL) (202) 225-3376
John Sarbanes (MD) (202) 225-4016
Henry A. Waxman (CA) (202) 225-3976
Monday, September 30, 2013
About My Daughter Penny
11/14/2013 UPDATE at bottom of the page!
As most of you know (or some of you may not) on February 13, 2013 my 18 month-old daughter, Penny, passed away unexpectedly in her sleep. Next week Rachael, Lucy and I are going to Washington DC to lobby the Congress and Senate about the Sudden Unexpected Death Data Enhancement and Awareness Act (S.314/H.R.669) which was introduced with bipartisan support. This Act would fund research and standardize autopsies for for stillbirths, SIDS and SUDC. Right now the way autopsies are performed and data from autopsies are collected in these types of deaths vary from county to county. (Except in the case of SIDS, which is defined as a child 0-12 months.) This would extend the age range of the standardized autopsies and data collection to include stillbirths up to 4 years-old. Penny was 18 months-old and considered SUDC. "Sudden Unexplained Death in Childhood". So I'm asking you for a favor. This time around I don't need you to watch my TV show or buy anything or fund a Kickstarter. It's way easier.
Right now all I need you to do is click on one link and write your Senator or Congressman and ask them to support S.314/H.R.669. That's it.
I'd never called or written an elected official in my life, until a few weeks ago, and in doing so we got meetings with the Health Advisors to Senator Boxer, Senator Feinstein, Congresswoman Pelosi and a personal meeting with Congressman Adam Schiff himself. So believe it or not, writing your representative really does work. I'm not asking you to meet with anyone, just an email to put it on their radar. One email and you're done.
All you have to do is click on the link below and follow the instructions and an email will be sent to your specific Congressman and both Senators from your state. It takes less than a minute. It's super easy and super important to me and my family. If you want to do your own research on this issue before sending anything, I encourage you to do so.
Thanks so much everybody!
Andy Sipes
https://www.votervoice.net/SIDS/Campaigns/26685/Respond
UPDATE!!!! 11/14/2013
AGAIN, if you live or work in any of the states that the following Congressional members represent - PLEASE PLEASE PLEASE- call their DC office before Nov 20 and ask for their support of HR669 at the hearing and in any negotiations that follow.I wanted you all to know that I have been informed that HR669 will be included in a hearing next week of the House Subcommittee on Health.Details: November 13, 2013Committee on Energy and Commerce Subcommittee on HealthHEARING NOTICEThe Subcommittee on Health will hold a hearing on Wednesday, November 20, 2013, at 2:00 p.m. in 2123 Rayburn House Office Building. The hearing is entitled “Examining Public Health Legislation to Help Local Communities.” Witnesses will be announced and are by invitation only. The hearing webcast will be available athttp://energycommerce.house.gov/.It has taken more than 4 years to get to this point, so it is reason to celebrate!!!!! And then (sorry) quickly move into action! :)TO HELP: If you live or work in any of the states that the following Congressional members represent (listed on bottom of this email)- PLEASE- call their DC office before Nov 20 and ask for their support of HR669 at the hearing and in any negotiations that follow. If you have family/friends in their district- please ask them to call. And if you had meetings with any of the these offices in the past, this would be a good time to followup. You can find their contact info on their website using the formula:lastname.house.govIf you have any questions, please let me know. The hearings are open to the public and can be viewed online thru the link in the above announcement. Also, I am confirming that Congressman Pallone has all the org letters of endorsement which will be read into record at the hearing. If anyone knows of any orgs that are thinking of endorsing the bill and are not on the list on our webpage, please instruct them to get me their letters ASAP. http://sudc.org/Advocacy/FederalLegislation.aspxThank you!
Republican
Chairman: Joe Pitts (PA)
Vice Chairman: Michael C. Burgess, M.D. (TX)
Ed Whitfield (KY)
John Shimkus (IL)
Mike Rogers (MI)
Tim Murphy (PA)
Marsha Blackburn (TN)
Phil Gingrey (GA)
Cathy McMorris Rodgers (WA)
Leonard Lance (NJ)
Bill Cassidy (LA)
Brett Guthrie (KY)
Morgan Griffith (VA)
Gus Bilirakis (FL)
Renee Ellmers (NC)
Joe Barton (TX)
Fred Upton (MI)
Democrat
Ranking Member: Frank Pallone, Jr. (NJ)
John D. Dingell (MI)
Eliot L. Engel (NY)
Lois Capps (CA)
Jan Schakowsky (IL)
Jim Matheson (UT)
Gene Green (TX)
G.K. Butterfield (NC)
John Barrow (GA)
Donna M. Christensen (VI)
Kathy Castor (FL)
John Sarbanes (MD)
Henry A. Waxman (CA)
Friday, August 20, 2010
Videos!
Lucy eating Dinner from Andy Sipes on Vimeo.
Lucy pooping her pants from Andy Sipes on Vimeo.
Lucy at the Disney parade from Andy Sipes on Vimeo.
Friday, March 26, 2010
Year One Video
Sunday, January 31, 2010
Woops...
Thursday, December 3, 2009
Where did November go?
I really can't believe how quickly the last eight months, let alone the last eight weeks, have passed. In the last two months we've made trips to Connecticut, Pennsylvania and California. All the new places and new sights have made Lucy even less interested in snuggling. She's always on the go, looking for new things to mouth. She definitely knows the forbidden fruit: shoes, remotes, iPhones, and gets really quiet when she gets her mitts on any of these items. I’m not saying she’s sneaky, but she is already showing signs of being a daredevil and a mischief maker (both of which I celebrate wholeheartedly). Her crawling is pretty fast these days and she's experimenting with letting go of furniture after she pulls herself up. I guess she'll be standing all on her own in a couple of months. She also has a new bottom tooth. That makes the score bottom 3, top 0.
Lucy has several new baby friends in Atlanta and she loves play dates at the park. She usually greets other babies with loud squeals of delight and aggressive "kisses." We call her mouthing and licking "kissing." It makes us feel less violated when she attacks our faces.
In less than two weeks, we'll get back on a plane to Oklahoma City and then to Arkansas. We can't wait to see how Lucy responds to her first Christmas tree. What a treasure it is to see old things through her eyes.
I guess I was a bit of a cynic before this babe came into our life. I used to pooh-pooh proclamations about how different the love for a child is from anything else. But every day I am more and more in love with this little person and I truly can't express how immense my emotions are for her
Again, sorry for not practicing any editorial skills with these photos (but, come on, she’s kind of cute in each one).
October
Pennsylvania






